Knit and Natter raises profile of neurological conditions

Raising awareness of two rare neurological conditions, Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD), was the focus of a meeting, when Macclesfield MP, David Rutley held with members of charity PSPA. 

PSPA was brought to David’s attention through local constituent Patricia Williams who runs the Hummingbird Knit and Natter group, which raises funds for a number of charities, including PSPA. The meeting provided the opportunity for David to meet with the Chief Executive of PSPA, Rebecca Packwood and local volunteers Alison Knight and Valerie Wallace.

The Hummingbird Knit and Natter group has played a vital role in raising much needed funds for PSPA. However, the group also donate to other charities which have supported their cause, such as the Cheshire Eye Society and the Alex Project. In total they have so far raised over £11,000 for local charities and organisations. 

PSP and CBD are two rare degenerative neurological conditions caused by the premature loss of nerve cells in the brain. There are currently 4,000 people living with a diagnosis in the UK, with an estimated 10,000 people thought to have either condition. 

In June 2023, the charity launched its #BeAware campaign to enable people to become more aware of symptoms involved in the two conditions and ways to improve the quality of life for those when diagnosed. The charity is distributing Eye Red Flag posters to local opticians as well as in GP surgeries to help with this task. It has also organised several Walk of Hopes, which aim to get people talking about the illnesses and how it can impact those affected. 

More information on the conditions and how to get involved, can be found using the following link, https://www.pspassociation.org.uk/.

Speaking after the meeting, David said “The work PSPA is doing to raise awareness of PSP and CBD is vital. It is important those with family members suffering from these conditions and also health service professionals are more fully educated on the symptoms, to ensure diagnosis can be quicker and more efficient to enable a better life for those affected.”